Where available, we have linked to organisations providing condition specific information. Use our search or filter functionality in order to get to the information specific to you and your family’s needs.
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The economic and social implications of the coronavirus crisis are already having profound impacts on individuals and families affected by genetic, rare and undiagnosed conditions, as well as on the voluntary organisations and charities that support them.
The impact of Covid-19 on the charity sector is devastating. Many charities are struggling to support their communities and wondering if they will survive. We are working hard to support all our members and the wider genetic, rare and undiagnosed community but we share their concerns - please help us help them.