Contact Information

Got a question, query or just want to know more? Send us a message and we’ll respond as soon as possible.

Do you run an organisation and want to join the weekly genetic and rare virtual community check in?

Send us a message either using this form or by email. Let us know your organisation’s name, the community you support and the best email address to contact you on and we will send you joining instructions. 

If you have a press inquiry please ring our press officer on 07739 286397.