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Latest news and updates

This page is updated regularly with news and updates on Covid-19 related to the UK’s genetic, rare and undiagnosed community. If you have information you would like to share please email covid-19@geneticalliance.org.uk.

For additional information about Covid-19 guidance please check out the country specific pages for England, Scotland, Wales and Northern Ireland.

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Featured Update

Featured Post

BEYOND COVID-19 – what does the future hold?

Data released today from an ongoing study conducted by Eurordis has given an early...

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General News and updates

Family story: Thoughts on Covid-19

One parent's thoughts on how Covid-19 has affected her family.

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Confused about PPE?

Overview of when PPE is required in the home.

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Coming out of shielding

Jane Edwards tells us what shielding has been like for her and her family, and how she is adapting to slowly coming out of shielding.

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Our family life during Covid-19

How living with a rare condition has been affected by the pandemic.

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Everything you need to know about wearing a mask

Update on the mandatory use of face coverings across the UK.

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Interactive session with Breathing Space

Join our interactive session for practical advice to cope with stress, anxiety and promote emotional wellbeing.

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The future of shielding in Scotland - online session

Join our online session on the future of shielding.

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So many changes ...

SWAN UK member Jenni shares her son's experience of lockdown.

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