Latest news and updates

One parent's thoughts on how Covid-19 has affected her family.

Jane Edwards tells us what shielding has been like for her and her family, and how she is adapting to slowly coming out of shielding.

How living with a rare condition has been affected by the pandemic.

Update on the mandatory use of face coverings across the UK.

Join our interactive session for practical advice to cope with stress, anxiety and promote emotional wellbeing.

Join our online session on the future of shielding.

SWAN UK member Jenni shares her son's experience of lockdown.

Update from the Rare Disease Implementation Group, whole genome sequencing for sick neonate, and more...