Latest news and updates

Heather Delaney tells us what the first and second lockdown have been like for her, the challenges she has experienced and the lessons learned.

The three vaccines are effective and safe with adverse reactions that, when present, are usually mild and resolved within a few days after administration.

New guidance priorities clinically extremely vulnerable individuals for Covid-19 vaccine.

Genetic Alliance UK recommends that people with genetic, rare and undiagnosed conditions be prioritised for Covid-19 vaccine. 

Clare talks about the decisions her family has to make to keep their extremely clinically vulnerable son safe during the new lockdown.

One parent's thoughts on how Covid-19 has affected her family.

Jane Edwards tells us what shielding has been like for her and her family, and how she is adapting to slowly coming out of shielding.

How living with a rare condition has been affected by the pandemic.