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How living with a rare condition has been affected by the pandemic

Update on the mandatory use of face coverings across the UK

If you are an adult 18+ living with a rare, ultra-rare or undiagnosed condition or a parent or carer of a young person or adult living with a rare, ultra-rare or undiagnosed condition we want to hear from you. Take part in a workshop about care coordination for rare diseases.

Join our interactive session with Breathing Space, a Scottish organisation providing a first-stop service by an experienced advisor who will listen, offer information and advice.

Join our online session on the future of shielding

SWAN UK member Jenni shares her son's experience of lockdown