Easy read documents about Covid-19

How living with a rare condition has been affected by the pandemic

Update on the mandatory use of face coverings across the UK

If you are an adult 18+ living with a rare, ultra-rare or undiagnosed condition or a parent or carer of a young person or adult living with a rare, ultra-rare or undiagnosed condition we want to hear from you. Take part in a workshop about care coordination for rare diseases.