EURORDIS alert: Critical care guidelines during Covid-19 pandemic
Eurordis have issued a statement urging policy makers and authorities throughout Europe to take immediate action to protect those living with rare diseases during the COVID-19 pandemic.
Eurordis, the European umbrella body for rare disease organisations, is calling for an immediate revision of all triage guidelines that could lead to discrimination against or reprioritisation of people living with rare disease, in particular in relation to access to intensive care.
Related news and updates
Coming out of shielding
Jane Edwards tells us what shielding has been like for her and her family, and how she is adapting to slowly coming out of shielding.